Honorary patronage:
Honorary patronage of the First Lady of Poland Agata Kornhauser-Duda
Honorary committee “X Weekend with SMA conference”:
Patients Rights Ombudsman Bartłomiej Chmielowiec
XI Weekend with SMA conference
Key information
Main topic
Spinal muscular atrophy (SMA)
Where?
Hotel Boss
Żwanowiecka 20 street
Warsaw
When?
2nd-3rd June 2023
For whom?
SMA Families
SMA specialists
Everyone who’s not indifferent to SMA
Weekend with SMA conference, organized annually by the SMA Foundation since 2013, is the largest event dedicated to spinal muscular atrophy in Europe and the second largest such conference in the world.
The main part of the conference will be transmitted online.
XI Weekend with SMA conference starts in:
This is how it was last year:
Join the Weekend with SMA
Register and specify your indicate your preferred way of participation. Number of in-person places is limited and distributed on a first come first served basis.
Support the organization of the SMA conference:
SMA conference program
Friday – 2.06
| 15:00 | Registration |
| 16:00 | SMArt RUN |
| 18:00 | Dinner |
| 19:30 | Gala |
| 20:30 | Costume Ball for Children |
| 21:30 | Light to the sky |
| 22:00 | Ball for parents and adult attendees |
Saturday – 3.06
| 9:00 | Registration | |||
| 10:00 | Inauguration | Online broadcast | ||
| 10:10-10:30 | From the world of SMA – events from the last year | |||
| 10:30-11:30 | My past year – expectations and experiences of people with SMA | |||
| 11:30 | Group photo – in front of the hotel | |||
| 12:00-12:30 | New molecules, therapies, and research: what medicine has in store for us | Online broadcast | ||
| 12:30-14:00 | What lies ahead for the world of SMA: a meeting with experts – Q&A session | |||
| 14:00-16:00 | Lunch | |||
| 16:00 | Prevention and respiratory support during severe infections (group I for children) – MSc Artur Bartochowski, physiotherapist, Chiara Mastella, representant of Kalos Company | Workshop: Facial electrostimulation – possibilities and limitations – Dr. Ewa Winnicka, neuropsychologist | Hip joints in children with SMA – physiotherapeutic goals – Dr. Agnieszka Stępień, physiotherapist | Support for people with disabilities – a systemic solution – MSc Kamila Kołakowska, lawyer, career advisor |
| 16:30 | ||||
| 17:00 | Workshop: Gastrointestinal problems in patients with spinal muscular atrophy – Dr. Agnieszka Borys-Iwanicka, gastroenterologist | Utilizing unloading conditions to activate movement in people with spinal muscular atrophy – MSc Małgorzata Wójcik, physiotherapist | Workshops: Individual AAC user communication system – MSc Joanna Piłat, neurologist, educator, AAC therapist (Olga) | |
| 17:30 | Prevention and respiratory support during severe infections (group II for young people and adults) – MSc Artur Bartochowski, physiotherapist, Chiara Mastella, Kalos Company: Dr Francesco D’Abrosca, Francesca Serafini | |||
| 18:00 | Workshop: Active with SMA – actions towards social activity and fundraising – Kornelia Matuszewska, fundraiser | Parent, take care of your spine | ||
| 18:30 | ||||
| 19:00 | Closing of the Conference | |||
Patronage of the SMA conference includes:
Sciantific patronage:
Media partners:
Our supporting partners:
Become our Supporting Partner!
Write to [email protected] and find out the details of cooperation!
Help us with the activities of the SMA Foundation and the organization of the Weekend with SMA.