XI Weekend with SMA Conference

2nd-3rd June 2023 Hotel Boss

Honorary patronage:

Honorary patronage of the First Lady of Poland Agata Kornhauser-Duda

Honorary committee “X Weekend with SMA conference”:

Patients Rights Ombudsman Bartłomiej Chmielowiec

XI Weekend with SMA conference

Key information

Main topic

Spinal muscular atrophy (SMA)


Hotel Boss
Żwanowiecka 20 street


2nd-3rd June 2023

For whom?

SMA Families
SMA specialists
Everyone who’s not indifferent to SMA

Weekend with SMA conference, organized annually by the SMA Foundation since 2013, is the largest event dedicated to spinal muscular atrophy in Europe and the second largest such conference in the world.

The main part of the conference will be transmitted online.

XI Weekend with SMA conference starts in:


This is how it was last year:

Join the Weekend with SMA

Register and specify your indicate your preferred way of participation. Number of in-person places is limited and distributed on a first come first served basis.

Support the organization of the SMA conference:

SMA conference program

Friday – 2.06

16:00SMArt RUN
20:30Costume Ball for Children
21:30Light to the sky
22:00Ball for parents and adult attendees
*program may be subjected to change

Saturday – 3.06

10:00InaugurationOnline broadcast
10:10-10:30From the world of SMA – events from the last year
10:30-11:30My past year – expectations and experiences of people with SMA
11:30Group photo – in front of the hotel
12:00-12:30New molecules, therapies, and research: what medicine has in store for usOnline broadcast
12:30-14:00What lies ahead for the world of SMA: a meeting with experts – Q&A session
16:00Prevention and respiratory support during severe infections (group I for children) – MSc Artur Bartochowski, physiotherapist, Chiara Mastella, representant of Kalos CompanyWorkshop: Facial electrostimulation – possibilities and limitations – Dr. Ewa Winnicka, neuropsychologistHip joints in children with SMA – physiotherapeutic goals – Dr. Agnieszka Stępień, physiotherapistSupport for people with disabilities – a systemic solution – MSc Kamila Kołakowska, lawyer, career advisor
17:00Workshop: Gastrointestinal problems in patients with spinal muscular atrophy – Dr. Agnieszka Borys-Iwanicka, gastroenterologistUtilizing unloading conditions to activate movement in people with spinal muscular atrophy – MSc Małgorzata Wójcik, physiotherapistWorkshops: Individual AAC user communication system – MSc Joanna Piłat, neurologist, educator, AAC therapist (Olga)
17:30Prevention and respiratory support during severe infections (group II for young people and adults) – MSc Artur Bartochowski, physiotherapist, Chiara Mastella, Kalos Company: Dr Francesco D’Abrosca, Francesca Serafini
18:00Workshop: Active with SMA – actions towards social activity and fundraising – Kornelia Matuszewska, fundraiserParent, take care of your spine
19:00Closing of the Conference
*program may be subjected to change

Patronage of the SMA conference includes:

Sciantific patronage:

Media partners:

Our supporting partners:

Become our Supporting Partner!
Write to [email protected] and find out the details of cooperation!
Help us with the activities of the SMA Foundation and the organization of the Weekend with SMA.

Driving directions: